Follicular Lymphoma Caregiver Resources

Find out how you can help support your loved one with FL

How can I help my loved one with FL?

As a caregiver, you have a vital role in helping to support a loved one before, during and after their infusion. Find out more about FL symptoms and diagnosis.

What should I expect during KYMRIAH® (tisagenlecleucel) treatment?

Like with other cancers, no two experiences with follicular lymphoma are the same. Patients, families, and caregivers may cope differently with the treatment journey.

Visit What to Expect to explore each step of the KYMRIAH treatment process in detail. In Patient Stories you can learn about experiences from other patients with r/r FL like your loved one.

How can I support my loved one?

There are so many ways in which you can help your friend or family member during their treatment journey. Here are a few ideas for you:

  • Take your loved one to and from appointments
  • Be prepared for doctor discussions
  • Use a binder or a digital application to organize appointments, contact details, and medical information
  • Ensure your loved one takes their medication
  • Notice any changes in their condition
  • Understand your loved one’s needs
  • Establish a support network of friends, family, spiritual groups, etc., and ask for help when you need it
  • Reach out to support groups
  • Understand the side effects your loved one may experience after treatment, and know what to look out for
  • Call for help in an emergency

How can I look after myself?

As a caregiver for someone with FL, it's important not to forget to look after yourself as well. Take some time to recharge, so you can better help the person you're caring for. Remember, when you are your best self, you are the best caregiver you can be. Here are some ideas:

  • Practice self-care
  • Consider counseling
  • Lean on social and emotional support networks
  • Engage in physical activity
  • Connect with spirituality
  • Find ways to relax (try yoga, breathing exercises, or meditation)
  • Pursue your hobbies or start a new one